Hi, it's Patrik Hutzel from INTENSIVECAREHOTLINE.COM , where we INSTANTLY improve the lives of Families of critically ill Patients in Intensive Care, so that you can have PEACE OF MIND, real power, real control and so that
you can influence decision making FAST, even if you're not a doctor or a nurse in Intensive Care!
In last week’s BLOG I’ve shown You
HOW TO GET AN UNFAIR ADVANTAGE whilst your loved one is critically ill in Intensive Care!
You can check out last week’s BLOG by clicking on the link here!
In this week’s PODCAST I want to feature Trudie and Dennis! Trudie’s mother and Dennis’ wife had a cardiac arrest at home and ended up in ICU ventilated, sedated and paralysed!
Podcast with Trudie and Dennis whose mother and
wife was in ICU after cardiac arrest! Listen to how
they overcame numerous challenges while they were
dealing with a difficult Intensive Care team!
Listen to Trudie’s and Dennis’ story how they battled with the Intensive Care team, when they believed that their mother and wife was kept in an induced coma, sedated and paralysed for longer than necessary, despite Trudie and Dennis seeing their mother wake up appropriately!
Trudie and Dennis have also been featured in our “YOUR QUESTIONS ANSWERED” section with their questions, when
their mother and wife first got admitted into Intensive Care!
You can check out Trudie’s and Dennis’ questions here
My Mother is in ICU after her HEART STOPPED!
We believe that the Intensive Care team is keeping her SEDATED & PARALYSED for LONGER THAN NECESSARY, what should we do?
But in this week’s PODCAST Trudie and Dennis want to share their and
their mother’s journey in Intensive Care which was extremely challenging!
Be inspired by Trudie and Dennis in the interview where they share
- Why they were extremely shocked when they found that their mother and wife was put back in an induced coma, with sedation and even paralysed despite their mother and wife appropriately waking up
- Why Trudie and Dennis reached out for help and why they started doing their own research
- How the Intensive Care team reacted when Trudie and Dennis tried to have control,
power and influence in this extremely stressful situation
- Listen to why the Intensive Care was all but transparent in their treatment and what Trudie and Dennis did to question their approach
- Listen to what Trudie and Dennis did when the Intensive Care team tried to send them away from their mother and wife
- Listen to how the Intensive Care team was trying to avoid Trudie’s and Dennis’ questions and how they got the answers anyway
- Listen to how condescending and arrogant the positioning of the
Intensive Care team was who told Trudie and Dennis that “they don’t understand what’s happening anyway”
- Listen to what Trudie and Dennis did to challenge the “perceived authority” and
the “perceived power” of the Intensive Care team
- Why Trudie and Dennis at first didn’t believe that they could have PEACE OF MIND, control, power and influence and how
INTENSIVECAREHOTLINE.COM’s strategies changed that believe
- Why Trudie and Dennis believe that INTENSIVECAREHOTLINE.COM and Patrik empowered them to challenge the Intensive Care team and get the outcomes that they
wanted!
Listen to the interview here
http://intensivecarehotline.com/podcast-with-trudie-and-dennis-whose-mother-and-wife-was-in-icu-after-cardiac-arrest-listen-to-how-they-overcame-numerous-challenges-while-they-were-dealing-with-a-difficult-intensive-care-team/
Also, check out our "YOUR QUESTIONS
ANSWERED" section
where I answer all of YOUR questions
http://intensivecarehotline.com/category/questions/
Hi, it's Patrik Hutzel from INTENSIVECAREHOTLINE.COM , where we INSTANTLY improve the lives of Families of critically ill Patients in Intensive Care, so that you can have PEACE OF MIND, real power, real control and so that you can influence decision making FAST, even if you're
not a doctor or a nurse in Intensive Care!
This is another episode of “YOUR QUESTIONS ANSWERED” and in last week’s episode I answered another question from one of our readers and the question last week was PART 1 of
“My Mother is in ICU after her HEART STOPPED! We
believe that the Intensive Care team is keeping her SEDATED & PARALYSED for LONGER THAN NECESSARY, what should we do?”(PART 1)
You can check out the answer to last week’s question by clicking on the link here.
In this week’s episode of “YOUR QUESTIONS
ANSWERED” I want to answer the next question that Trudie from the UK has as her mother continued to be in Intensive Care after the cardiac arrest!
So, therefore in today’s episode of “YOUR QUESTIONS ANSWERED” I want to answer PART 2 of
“My Mother is in ICU after her HEART STOPPED!
We believe that the Intensive Care team is
keeping her SEDATED & PARALYSED for
LONGER THAN NECESSARY, what should we
do?”(PART 2)
Hi Patrick,
Thank you. It was indeed a pleasure to talk to you on Skype!
Things are going well. I went straight to the hospital after talking to you. They had taken the tube out of Mum's mouth. She had a mask on all the time. She was doing
pretty well (speaking etc), but then they said her CO2(carbondioxide) levels were too high and this might be due to neurological impairment. They considered putting her back on the ventilator. Obviously we wanted Mum to be safe, but the big message I took from you, was try to stay off the ventilator. So in the end, they tried a more fitted mask and her CO2(carbondioxide) levels improved.
They made us leave whilst the doctors were discussing this. We tried to resist, but in the interests of maintaining a calm bedside we stepped just outside and they walked us away. We will be addressing their confidentiality issues at a formal meeting tomorrow morning.
My feeling is that a constant mask is better than a tube, but still essentially ventilation - although they said they are gradually reducing the oxygen they give, and if Mum needs a bit more help then fair enough. Her progress overall is good. My Dad was telling her what you said about moving around helping her oxygen levels and she made a real effort to move her arms and legs and after
some physiotherapy made another big jump in her calm, alert and comprehensive state.
So some small set-backs, but lots of leaps forward. We've got some barriers to challenge tomorrow, so I am looking forward to planting some seeds of change.
Dad's very happy to do an interview in a while, and perhaps get Mum involved too.
I will of
course like your facebook page. I've already mentioned you on my facebook account.
Thanks so much. Your advice and support has been amazing.
Best wishes
Trudie
Hi Trudie,
that's encouraging news!
It sounds like her increased CO2(carbondioxide) levels could be partly because there is still some sedation in your mother's system or given that you mentioned that she has Asthma, a higher than normal CO2(carbondioxide) level is what normally comes with Asthma.
High
CO2(carbondioxide) levels can of course also be a result of neurological deficits, however given that you are saying that your mother is talking and that she is already moving, I think that this is encouraging.
Check out our section about Asthma here
http://intensivecarehotline.com/clinical-pictures/acute-severe-asthma/
If she needs the oxygen mask for the next few days to keep her off the ventilator, so be it and even if she needs a tightly fitted mask(BIPAP mask) for the next few days to get her CO2(carbondioxide) down to normal levels to keep off the breathing tube and ventilator, so be it.
Here is some information about BIPAP and Non-invasive ventilation
What is BiPAP ventilation?
Non- invasive ventilation(NIV)
How long is a Patient
kept on a BIPAP machine in Intensive Care?
It's also good to hear that your mother is calm, alert and comprehensive. That's encouraging as well and doesn't point towards a neurological impairment or deficit.
Also, I can see why you left the bedside in order to not upset your mother and keep everything quiet and peaceful.
I still
feel that in this day and age, there should be absolutely no need to send families of critically ill Patients in Intensive Care out.
Where is the transparency? What do Intensive Care teams discuss that the Patient but not their Families can listen to?
But that's exactly what Intensive Care teams have done for decades, they position themselves as the "perceived authority" and the "perceived power".
And that's not the worst thing, the worst thing is that Families buy into the Intensive Care teams perceived power positioning.
It's good to hear that
you have a family meeting tomorrow and it's good that you will bring up confidentiality issues.
Planting some seeds of change can be challenging in an environment where the Intensive Care team is so used to be running the show and they get away with all sorts of arrogant
behaviour because Families of critically ill Patients feel gratitude and they feel indebted towards the Intensive Care team.
You have to be aware of these psychological dynamics, because otherwise, the Intensive Care team will continue to keep you "at arm's
length".
All the best and let me know if you have any other questions!
Sincerely, your friend
Patrik Hutzel
If you want your questions answered just hit reply to this email or email me at support@intensivecarehotline.com and I'll answer your questions!
You can also send through your stories and share them on our BLOG for our readers! Just email support@intensivecarehotline.com or leave a comment on our BLOG
Or if you want to be featured on our podcast with your story, just email me at support@intensivecarehotline.com
FREE Video Mini- Course out now!
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Your Friend
Patrik Hutzel
Critical Care Nurse
Founder& Editor
WWW.INTENSIVECAREHOTLINE.COM